Kye Gbangbola was Chair of the Sickle Cell Society, the award-winning national patient organisation in the UK, for nearly a decade. He received widespread praise for his leadership, advocacy, and for his powerfully inspiring and motivational speaking, and lectures.
The Sickle Cell Guide represents a turning point in knowledge, education, and care, for people living with this debilitating genetic condition and their families, but also for medical professionals. It makes clear health is so much more than just a medical matter.
The Sickle Cell Guide provides all the information needed about sickle cell disorder (SCD); the world’s most common and fastest growing genetic condition. It helps organisations and individuals on their journey of understanding and better healthcare.
The guide explains the condition, its history, impacts, and how to stay well. Other topics include healthcare services, treatments, cures, pain; causes and prevention, trait, transition, nutrition, work, and having a family.
It seeks to encourage sickle cell patients and their carers to participate in change, allyship, collaboration, research, trials, patient empowerment, inclusion, representation, and strive for racial equity. It explains how health economics has tremendous payback benefits from better treatment and cures.
If you would like to buy ‘The Sickle Cell Guide’ by Kye Gbangbola MBA please click here to purchase a copy.